Childhood Cancer · Hospital · Neuroblastoma

An Update on Phoenix’s Treatment

“Keep your face to the sun and you will never see the shadows.”  -Helen Keller When Phoenix was first diagnosed in January 2016, I received something in the mail that happened to have this quote on it.  It really spoke to me, and I have kept it in my mind during this year of treatment.… Continue reading An Update on Phoenix’s Treatment

Christmas · family · Family Fun · holidays · Winter

Christmas Eve and Christmas Day- 2016

I love this time of year so much, and look forward to Christmas vacation all year.  I love all of the little things we do to make the holidays special, and the experiences that we look forward to all year. Christmas Eve was spent at home: relaxing, watching Christmas movies, enjoying a visit from my parents, making sugar… Continue reading Christmas Eve and Christmas Day- 2016

Fall · family · Family Fun · Halloween · holidays · Hospital · Thanksgiving

Our Wonderful Fall- 2016

I am so behind on documenting everything due to all that has been happening with Phoenix and his health lately.  We are well into Winter and are heading into the new year, but I wanted to be sure to share about all of the fun we had over the Fall.  We so enjoyed our Halloween,  visit… Continue reading Our Wonderful Fall- 2016

Christmas · family · Family Fun · holidays

Christmas Tree Farm- 2016

I have mentioned it here many times before that traditions are super important to me, and that I love to celebrate holidays in special ways.  We were really hoping to be released from the hospital on Saturday so that we could make our annual trip to Elgin Christmas Tree Farm on Sunday.  Thankfully, we were released from… Continue reading Christmas Tree Farm- 2016

A Day In The Life · Childhood Cancer · family · Hospital · Neuroblastoma

A Day In the Life: Hospital Edition

Friday, November 25 at Dell Children’s for Immunotherapy, Round 4. Midnight- Vital signs, temperature is 101.1.  Phoenix is super restless and congested. 12:10am- Our night nurse, Tish, comes in to give Tylenol and listen to Phoenix’s lungs. 12:15- Our night nurse practitioner comes in to listen to his lungs (since he sounds so congested and… Continue reading A Day In the Life: Hospital Edition

Childhood Cancer · family · Family Fun · holidays · vacation

Looking Back: Trip to Albuquerque (Part 2)

December 29-31, 2015 After our first fun-filled days on our holiday vacation, we were excited to see what the next couple of  days had in store.  We started the day out with breakfast and racing up and down Ashley and Daniel’s neighborhood streets.  The kids had so much fun playing together, and so did all… Continue reading Looking Back: Trip to Albuquerque (Part 2)