Childhood Cancer · Hospital · Neuroblastoma

Coming Up Soon in Phoenix’s Treatment…

The last time I updated on Phoenix, we had just received the news that his Neuroblastoma had relapsed, and were beginning a new type of treatment.  He has since completed 3 rounds of this new treatment, and we are about to head to Dell for the 4th round on Monday. The plan was to continue with… Continue reading Coming Up Soon in Phoenix’s Treatment…

Childhood Cancer · Hospital · Neuroblastoma

An Update on Phoenix’s Treatment

“Keep your face to the sun and you will never see the shadows.”  -Helen Keller When Phoenix was first diagnosed in January 2016, I received something in the mail that happened to have this quote on it.  It really spoke to me, and I have kept it in my mind during this year of treatment.… Continue reading An Update on Phoenix’s Treatment

A Day In The Life · Childhood Cancer · family · Hospital · Neuroblastoma

A Day In the Life: Hospital Edition

Friday, November 25 at Dell Children’s for Immunotherapy, Round 4. Midnight- Vital signs, temperature is 101.1.  Phoenix is super restless and congested. 12:10am- Our night nurse, Tish, comes in to give Tylenol and listen to Phoenix’s lungs. 12:15- Our night nurse practitioner comes in to listen to his lungs (since he sounds so congested and… Continue reading A Day In the Life: Hospital Edition

Childhood Cancer · Eateries · family · Family Fun · Hospital · Neuroblastoma · Thinkery

The Roller Coaster Ride of Childhood Cancer

So, I wrote this post on Sunday afternoon and it was originally titled “Weekend Recap”.  We had a great couple of weekends which included a trip to Lost Pines, and then an awesome weekend which I wrote about in the below post while Phoenix was napping….   Friday started out great with a day at home for… Continue reading The Roller Coaster Ride of Childhood Cancer

Childhood Cancer · Neuroblastoma · Packing for the Hospital · Uncategorized

Childhood Cancer Advice- Some surprisingly helpful items to bring to the hospital

Mini broom and dustpan– Strange, I know, but this little guy has been so helpful in keeping our room clean while in the hospital.  Housekeeping only comes in once per day, and when you are living in a small space with a toddler, there will be crumbs everywhere.  I bring this small broom and dustpan with… Continue reading Childhood Cancer Advice- Some surprisingly helpful items to bring to the hospital