Childhood Cancer · family · Neuroblastoma · Uncategorized

Where To Begin…

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I began this blog back in November as a way to capture and remember our very ordinary, but beautiful life.  Since I last posted, so much has changed, and just haven’t even known where to begin.  I want to begin writing again as a way to keep everyone informed about what is going on, and also as a form of therapy for myself…to get it all out and to remember this tough, but special journey that we are going through.  I plan to update with current happenings, and also go back and try to catch up on everything that has been happening since January 3, 2016.

On January 3, Phoenix woke up from a nap with a 104.5 fever that would continue for more than three weeks.  During those weeks, we spent hours at various doctors until he was finally admitted to Dell Children’s Hospital, where they ultimately diagnosed him with Neuroblastoma.

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